Why Sickle Cell Anemia Advocacy Should Be Domesticated.
He's had crisis more than three times this year.
Parents were unaware of his medical predicament.
Until, he fainted in school and we had to rush him to the clinic. Alas, his diagnosis. He is a warrior.
A sick cell carrier. Parents were confused.
He takes his herbs very well, mama said.
After some days off school.
He resumed again.
Then, a dose of another crisis.
Such a brilliant 7years old young man
Poor moi, that day, I cried more than everyone at the clinic. Mama came, later and the breaking news was that plans had been concluded to take our little friend to the village in December. 🙆🙆
He is 'abiku'. Mama believes. (#Abiku is a term used for little ones whose life expectancy is extremely low). In the village, we would get the right herbal medications. There are concentrated herbal medicine in Osun -mama reiterated.
When we heard the word 'village'. Two things, we did:
1. We ensured mama did not leave the clinic until proper orientation on the subject matter (sickle cell anaemia) was discussed with her by the medical practitioners, because going to the village wasnt the cure.
After the session, a phone call was put through to the father and another orientation meeting, scheduled.
2. We hooked up via phone with a warrior friend. A supposed 'abiku' in the UK who is over 40years. Thankfully, he was able to communicate so well in Yoruba language with the mum and our little friend. It was a breakthrough. Hehe. #YorubaLanguageMadeEasy.
It turned out exciting for mama, especially being able to speak with someone she could relate with. Someone who was once termed 'abiku' now in his 40s. Someone in the UK and successful. She saw his pictured and was wowed. If he could live, my son can. The phone conversation went on for some minutes,
The dos and don'ts to healthy living was discussed, and village idea, silenced.
It's December and our little friend is still here 🙏🏼
#InformationEmpowers. We need more advocacy in rural communities. #No2AbikuTerminology
Parents were unaware of his medical predicament.
Until, he fainted in school and we had to rush him to the clinic. Alas, his diagnosis. He is a warrior.
A sick cell carrier. Parents were confused.
He takes his herbs very well, mama said.
After some days off school.
He resumed again.
Then, a dose of another crisis.
Such a brilliant 7years old young man
Poor moi, that day, I cried more than everyone at the clinic. Mama came, later and the breaking news was that plans had been concluded to take our little friend to the village in December. 🙆🙆
He is 'abiku'. Mama believes. (#Abiku is a term used for little ones whose life expectancy is extremely low). In the village, we would get the right herbal medications. There are concentrated herbal medicine in Osun -mama reiterated.
When we heard the word 'village'. Two things, we did:
1. We ensured mama did not leave the clinic until proper orientation on the subject matter (sickle cell anaemia) was discussed with her by the medical practitioners, because going to the village wasnt the cure.
After the session, a phone call was put through to the father and another orientation meeting, scheduled.
2. We hooked up via phone with a warrior friend. A supposed 'abiku' in the UK who is over 40years. Thankfully, he was able to communicate so well in Yoruba language with the mum and our little friend. It was a breakthrough. Hehe. #YorubaLanguageMadeEasy.
It turned out exciting for mama, especially being able to speak with someone she could relate with. Someone who was once termed 'abiku' now in his 40s. Someone in the UK and successful. She saw his pictured and was wowed. If he could live, my son can. The phone conversation went on for some minutes,
The dos and don'ts to healthy living was discussed, and village idea, silenced.
It's December and our little friend is still here 🙏🏼
#InformationEmpowers. We need more advocacy in rural communities. #No2AbikuTerminology
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